Tonight my husband asked me when will it be over? When will you be done? He was talking about my "projects". Simple enough question for most. For me it was a realization. I guess it is something I have always known inside but never vocalized.
You see I will never be done unless there is magically a cure for childhood cancer. The truth is cures take awareness and money. The truth is we need people seeing gold ribbons and immediately going I know what that's for. Why does knowing what the gold ribbon means help? ?
Money....sponsors. I don't know if you have checked the actual cost for a cure lately but its pretty damn expensive. Just to get one drug through experimental treatment has such a high cost many of our kids are using meds that have been around for decades!!
Not only do we need cures we need programs for parents and kids! Families fall apart every day because of a child getting cancer. It may be a family in the shelter because the basic cost of living has become too muc. Too much unpaid leave not enough financial help whatever the case may be.
Other families are just so fragile emotionally..its just waiting for the last thread to tear. One more hospital stay, one more setback, whatever it may be that causes the final rift.
These realities need to be painted for the unaware. Cancer isn't a cute little bald kid riding in a wagon. Cancer is a monster of screwed up lives, tears, and chaos as we pray to make it through tje storm. Hurricane Cancer doesn't give you the chance to evacuate, it comes in with a whoosh of wind and enough water to drown you with no FEMA to save you. Your National guard is the doctors and nurses that get you through the frontline still living and breathing.
Cancer never leaves, never rests, and never takes a break. When cancer finally stops I will...until then. ..I will continue my fight for awareness and cures.
