Watching, Waiting

That is what this week has been. Kin has RSV. For most no big deal. For us HUGE deal. The lovely accommodations we get 4 star;) Okay not complaining most the rooms here at Childrens' are now private and so yeah huge plus. Since she has a viral coughing thing that could instantly be overtaking the oncology ward we are definitely in one of those private ones. She is also quarantined to her room. Not like she really cares, too tired and too sick to even get out of bed. The plus is we get a nice private suite by the nurse's station;)

Appetite, nonexistent. Takes me back to last February when we spent the whole month here practically. Only it was the opposite then she was not allowed food and was on steroids so she was an angry hungry girl. Now she is allowed food and practically begging her to eat. UGH!!

Last night sucked! Yeah I could sit there and put it all fancy but it sucked. She had a headache until about 1 a.m. She did not break her fever until about 8:45 this morning so she went about 12 hours with it. They did some blood work just to rule out anything else. That is because if you have a new fever 24 hours after your last one that is standard procedure.

So today entails lots of watching and waiting. Her counts are still low. Hoping when they drew blood today they saw a change in those. Doubtful but a mama can hope!

And yeah no news her white blood cells are about 260, not good. I have no clue how long it will take them to go back up. I have asked and no one seems to know. I was truly hoping this would be a 2 or 3 day stay. However, that is not the case. I hope we can get back to our lives soon.

Kin got a transfusion today I know many of you just thought OMG! How Scary! It isn't for us it is just run of  the mill daily activities. It  is just an iv giving her what she needs. Nothing extraordinary. She had a fever off and on today. I hope this weekend the fevers are fewer and farther between because that usually means counts are rising.

I took the night off and I am home while her bio dad hangs with her. I look forward to a night in my own bed yet I know it still will not be a great night's sleep because my whole family is not here. It was nice to hang with my son today and hear about his week. I have missed him and my fiance so much. He had a trip to the planetarium and they laughed about Uranus. Yep! That's my boy! Tomorrow is PJ day with a book exchange and he couldn't be more excited.

As those of you who have your family whole and with you give them hugs and appreciate them today. For those that are missing your families, I am so sorry. I know many friends who are going through much more than I right now and I pray for you daily. Good Night and God Bless.